TSC Awareness Month

The emotions are running high today. All happy thoughts :)

I never in my life imagined that I would get to be a part of such a loving and caring community. I was so happy to see that there was so much support out there for us. To know that we aren't alone in this disease make the days easier. PLEASE join us in spreading the word about TSC. http://www.tsalliance.orgI hope that between all of us we can get the word out. Before Maddie was diagnosed I had NEVER heard of TSC and even when she was diagnosed it was still mind boggling to me. Everyday we learn a little more and are so thankful for the other families sharing their stories.

Update on Miss Maddie:

SHE IS WONDERFUL! She is 5 days seizure free :) We are staying positive and praying that this medicine will continue to work for her. She does have some fussy moments that aren't so fun, but I'll take that any day over seizures. The medicine she is on makes her sleepy, irritable and very shaky. She has to be constantly moving or she gets very aggravated. This added with teething can make for some crazy days. One thing that helps her is being outside. She loves fresh air. I took her to the park 3 separate times yesterday! But I don't mind one bit... I have my girl and that's all that matters.


And of course... PLEASE continue to pray for Maddie. God is taking such good care of her and we praise Him for that! He is such a good God! Please, also remember to pray for other people who are fighting this disease. I have become friends with many mom's through the TSC facebook page and I just can't stand to see other babies suffering from TSC problems so please lift them up as well. We serve a Mighty God and I love seeing him work in our lives each day!

We love you all so much!
Chris, Heather and Madilyn