A week past

Today marks a week since we brought Maddie home. It has been filled with so many emotions. Some days I feel like I can conquer this disease by myself and other days I feel somewhat hopeless. Thankfully, the down times are quickly gone thanks to all of you.

While we were in the hospital I wasn't sure what to share with people. I didn't want to not tell people because I knew we needed the prayers, but I also didn't want people to think we were asking for attention or sympathy. As most of you are aware, we pretty much plaster Maddie all over facebook. We actually catch a lot of flack for it... But I truly believe now that this was a part of God's plan as well. We have friends and family who have never met Maddie before but through facebook feel like they know her because they ALWAYS see pictures of her. I am so touched at what social network has brought to us. So many people have reached out to our family with prayers, kind words and support.

Maddie has been hanging in there. She is still having her seizures but they do seem more manageable now. However, it's still heartbreaking to see your child go through these things. I don't know how many times I have prayed for them to be taken off of her and put onto me. I continue to tell myself that the plan God has for us is far better than any plans Chris and I could have ever thought of. We are trucking along but still need prayers. We can tell they are working and we appreciate them more than you will ever know.

I will try to update this periodically to let you know how Miss Maddie is doing. Hopefully I'll do better than my past attempts at blogging :)

Love always,

Chris, Heather and Maddie