My Sunshine

I'm not even sure where to begin... Lets start with the good of this week.

We picked up my mother-in-law, Alex on Monday and boy was Maddie happy to see her "Oma". We have been so excited to see her and the trip couldn't have come at a better time. She had actually booked her ticket before all of the medical issues happened. God knew that we would need her around to help us out. We got a phone call on Tuesday that her medication would be in on Wednesday. We were so excited! This medicine is what we are hoping will completely put an end to her infantile spasms and hopefully correct her hypsarrhythmia. We had heard this medicine called a wonder and miracle medicine. So on Wednesday morning we woke up as if it were Christmas. We would jump at every loud truck passing by, just to make sure it wasn't the UPS guy passing our house. We finally got it in the afternoon and gave her the first dose around 4:00pm. We made sure to pray over her before giving the medicine to ask that God would be with her as we tried the first choice of treatment. Thursday came around and she was not happy. She screamed all day. Nothing I did would console her. I bounced, rocked, sang... you name it I did it. I was crying with her at one point. I just wanted her to be happy and that obviously wasn't going to happen. I finally decided to take her to the park for a stroll. I needed some time away and she needed a nap so bad. The park was what we both needed. She fell asleep and I got to rest my mind. I kept wondering how in the world were we going to get through this? I was thinking to myself surely every day wont be like this??? Well Friday came a long and things weren't much different. By 7pm I was mentally and physically exhausted and so was poor Maddie. Chris looked over at me and reassured me that I was dong a great job and things would get better. Thank goodness for that man! He knows how to lift me up when I'm down. I went to bed dreading today.. Chris was going back to work for the first time since everything happened and that meant I was going to be alone. We both prayed that today would be better for her....And what do you know :) Today she was so much better. She still seems a little lethargic but she was so much happier. I also, realized that we were seizure free today. What a BLESSING! I am so thankful for her happiness and I pray that she continues to be my happy little girl.

Even in the low times I feel God's presence. He keeps reminding me in small ways that I am not alone. And that this is his mighty plan. I keep thinking about Chris and I making the decision for me to quit my job to stay home with Maddie. That was God preparing us for this. I can't imagine the stresses we would have right now if we were both trying to work. We were so happy we had the opportunity for me to stay home with her....little did we know it would mean even more to us now.

I know I have said this over and over but we would not be able to wake up everyday without the love you all are showing us. It makes such a difference in our days and mood. Please, please, please continue to lift our family up in prayers. I have no doubt that your prayers are being heard and we are feeling them every day. Please pray that the medicine will not bother her like it has been. And please pray that it does the job and stops her seizures. Of course Chris and I need prayers badly as well. It's absolutely heartbreaking to not be able to help your child. Strength and patience are a necessity in this journey we are on so please continue to pray.

Before I stop the rambling, I also want to say thank you to those of you who are sharing our blog on your facebook. The more people praying the better. So please feel free to share away and to add us to your church prayer lists. You guys are AWESOME!

As always...We love you all!!

Chris, Heather and Madilyn