New Year, New Blessings

I hope you all had a very enjoyable holiday season. Our family sure did. We saw tons of family, ate way too much food and had many nights of laughter. I usually dread the end of Christmas because it usually seems to bring a time of let down from all the fun the season can bring. But this year it feels different. I was actually happy to see the holidays pass. The reason...we have a lot going on in the next couple of months. This month alone we have 3 appointments for Madilyn that will let us know how her body is handling the awful TSC disease. I'm nervous and anxious to get her results. We may start the weaning process if she has a clean EEG. I'm praying that that is exactly what we get to do. In the same since it frightens me... She has been on this medicine for almost 9 months. What if we start to wean and the seizures come back?! It's unlikely, but I'd be ok with NEVER seeing my daughter have another seizure. I know that God has brought us this far and I know he will continue to be right by our side. My earthly self can't help but be a worried mom. Speaking of worried mom..we had a scare about a week ago. Madilyn was having some tremors. My heart dropped as I watched her hands tremble. I called her neuro immediately and we made a decision to monitor her and take it slow. She hasn't had anymore since last week thank goodness!

In February we will be traveling to Florida to met Madilyn's great grandmother from Germany. She is flying into Florida for her 70th birthday. Chris hasn't seen his grandmother in years and I have yet to meet her, so needless to say we are very excited. We will also get to see my dad and family :) I can't wait to see my little brother :) Maddie and him just love each other.  

Fast forward to May and we will be apart of our 2nd TSC Awareness month. We have a lot of things planned for this year. I will post more about them come closer to time. We hope to see lots of people in blue shirts! Last year was so amazing!! 

Then the big trip... we are hoping to travel to Washington D.C in July to attend our first National TSC Conference. It is very important to me to go. There will be doctors, scientist, other TSC moms and much more. The knowledge we will gain is immeasurable. Since this disease isn't something that is going to go away, I want to fill my brain with all the information I can.

In order to be able to attend the conference we will be doing a few of fundraisers to assist with the travel expenses. We have also filled out a scholarship that may help with the fees. If you would like to help you can go to www.helpourfundraiser.com login-504704 password-maddie

Well I have a toddler who is ready to play, so I better listen to the boss :) As always, we appreciate the prayers, love and support that you all show our family. We are thankful for each and everyone of you!!

Love you all,

Heather