Houston TS Clinic

It's funny how much life changes. Before Maddie and TSC, a trip to a Specialty Clinic wouldn't be exciting or something worth counting down the days too. It used to be concerts, football games and netflix binging that got us excited. Now it's really awesome doctors and medical professionals that excite us. Oh how times change :)

Needless to say, we are very hopeful for our trip to the Houston TS Clinic. To be honest I'm not exactly sure what we will come back with, but I know it will be more than we know now.

We will be meeting with a new geneticist that is doing research into patients who show no mutation. It doesn't really mean that it will benefit us directly, but it could make a step forward in the TS community by learning more about these select few.

We will also be speaking to a neurologist that we met at the World Conference. She seemed so wonderful I can't wait to pick her brain(no pun intended) about some things going on with Maddie. It's so hard being a parent because you constantly worry about your child, but throw in a disease and the anxiety is even worse. I'm on constant watch for signs of other TS manifestations. It can be draining. I'll be happy to hopefully put some of those things to rest with this visit.

Pease pray for us as we travel and visit with a new set of doctors. The trip will be a long one, but I'm confident it will be worth it. I can't wait to update you all on all that we learn.

Thanks for all the prayers! This momma is going to need them!!!

Heather

Maddie is checking through our schedule making sure it works with her ;)